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ThePulse - > The Pulse -> 'Sick blogs' catching on?
'Sick blogs' catching on?
Earlier this year, I wrote on this blog about a family who started a Web site to keep loved ones informed about a Bakersfield woman's battle with cancer.

What do you think about this method of keeping everyone in the loop? (Read "Web site spreads news of woman's condition" in today's Californian.)

The site for Vicki Moore, a Bakersfield mother of two, is www.updateonvicki.com.

Another example is a blog started by a friend of a man in Kentucky who was in a terrible car accident. You can see that at www.janaandbrian.blogspot.com.

Some sites have even been started for "sick bloggers," as they've been called. CarePages.com and CaringBridge.org allow patients to write about their journeys and connect with others facing the same disease.

Using the Web as a tool to keep loved ones informed makes sense. It can act as a release.

And as Moore's mother said in the story, keeping people updated can be a daunting and heart-wrenching task.

"All of our cell phones stayed just packed with voice mail messages of people wanting to know what was going on," said Moore's mother Beth Cheatwood, 59. "Then the phones would be full. They would come to the hospital."

But sites like these do throw privacy to the wind. Traditionally, health information seems to be the kind of info you hold close and don't let anyone else see.

But then again, is anything really "private" anymore?

What are your thoughts on this? Would you use a Web site to keep family and friends informed?
Posted in these Groups:
Topics: health, cancer, blogs, internet, web, Technology, Family, bakersfield, disease, information
posted by ThePulse on Monday, April 9, 2007 at 01:58 PM
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7 comments from 6 users

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posted by TomW on Apr 9, 2007 at 03:19 PM
I think the notion of privacy has changed because people feel so isolated.  Posting on the internet, especially if you don't use your own name is still fairly anonymous and like shouting in a waterfall.  There is so much out there that I don't think anyone would even read most of these pages.

It also can't be bad for someone to write what they are going through and throw it into the world.  I'd be curious to see a study on whether that had positive effects for the patient.
posted by ThePulse on Apr 9, 2007 at 03:30 PM
I know that a lot of hospitals urge patients to write about what they go through. Several even contract with blog sites like CarePages.com.

And Carepages.com is only viewable by people you send the password to, so that makes it a little more private.
posted by robinislost on Apr 9, 2007 at 05:55 PM
I have seen the the CarePages Web site before, which was an interesting thing to see. I hadn't ever seen a Web site like that before until recently.

Remember when that little boy was hit by the boat up at Shaver Lake? His parents created a CarePages account for him and invited everyone from his school to the page so they could all see what was going on with him and keep them all updated. It seemed like hundreds of comments were always pouring in. My little brother attends the school he was attending and we checked out the site for ourselves to see what it was all about. I think it's a great idea.
posted by tkozy on Apr 9, 2007 at 09:50 PM

Not just blogging, but the internet in general is a wonderful gift to the disabled and their caregivers as well. It allows one to at least keep the mind active. When the body or circumstance will not allow physical activity.

posted by TomW on Apr 9, 2007 at 10:34 PM
Thanks, Emily.  I didn't know about the passwords.
posted by anonymous on Apr 10, 2007 at 12:46 PM
I think in cases such as Vicki's, you almost have to have a website up.  She is very well known in the community and in the mortgage business.  People love her.  If there wasn't a website up, then there would be a thousand phone calls and probably even more visitors.  This is the best way to keep all the people informed who know and love her.  Knowing who Vicki is, if she didn't want this website up, they wouldn't have it up.  She can't physically visit or see all her friends but she can read their comments which are an encouragement to her.
posted by anonymous on Apr 12, 2007 at 05:05 PM
I personally think they are awesome.  My family e-mails everyone on updates on family members due to babies, sickness, surgeries, etc.  It is a very easy to keep everyone updated. If you are the caregiver or someone close to the person in the website, many times you can't just stop what you are doing to call or write everyone about updates. Many of us update our e-mails at night when we have 5 minutes to our selves after the kids are in bed. It also keeps everyone informed about medication, procedures, etc. What is that ill person was visiting you and suddenly passed out. What would you tell the doctor at the hospital? They have cancer.....  there on medication.... I think this or that.... no at least the websites they can get information that is extremely helpful. 
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