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Steve E. Swenson
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steveeswenson - > SteveE's Stories -> I'm a chemo oddity or a wimp
I'm a chemo oddity or a wimp

I went in Monday for my first chemotherapy. That is is Thursday afternoon now and this is the first I'm been able to write about it shows that it knocked me down.

But I just got back from the doctor's office and learned I'm not checking out yet.

The plan was to get  chemo on Monday, play 9 holes of golf on Tuesday and see if on the third and fourth day if the chemo kicked in.

It kicked in before I got home on Monday. The predominant feeling all week has been tired, light headedness and side effects that began with (gee, I hate to use this word, but) diarrhea.

That quick was a very unusual reaction. But it didn't last. I probably have the other end of that spectrum now.

Here's the deal with chemo. Bowel movements are a window to your health.

Because chemo has strong effects, you are given anti nausea pills. I was lucky to get the best on the market.

But Tuesday, I started upchucking, and that continued into Thursday morning at rather long intervals.

I've been talking with Renee (she's the pretty nurse in the picture) every day, and once Wednesday night with Dr. Anthony Ciarolla, on my effects, so they decided to bring me in for an office visit Thursday afternoon.

It was like taking your car in to find it was mostly all right. My blood pressure,  heart beat and  lung capacity are all okay.

But I have lost 5 pounds. The biggest trick in all this is figuring out what to eat and drink, and then seeing if you can actually do it.

The first thing is when you are essentially in bed most of the time, you really don't feel like eating. Having the strength to eat and eating something that tastes good have been rare times since Monday.

I've been instructed to work on that and get up and around more.

My favorite foods aren't making any of these lists. But we tried spare ribs on Tuesday night, and while I didn't eat much, a few hours later I was face down at the porcelain bowl.

I had two fluid bags of chemo on Monday -- Taxotere and Cisplatin -- and I take four  5FU pills a day for a couple weeks. These are moderate strength. I'm glad they didn't start me with anything more heavy duty.

I met some nice folks. It was all men in the morning so we could leave the toilet seat up.

One man was in for his second treatment. He is a golfer so we had lots to chat about. His brother, once a heavy man but now very svelte, had been through chemo and radiation such as I will receive, and he was kind enough to show me his stomach tube.

(The tube is because you can't swallow with radiation and you need a passage way for nutrients. I'll get radiation in about 5 weeks.)

I couldn't have gotten through these four days without Mary. She has taken time off work, worried about me, massaged me, cooked for me and told me I was her rock. Well the rock isn't quite as sturdy right now.

But Dr. Ciarolla told me all these down times will pass. So I'm going to try to be less of an oddity or wimp. I want to be out in the swing of things.

I've been writing about this to demystify the process. I've talked with others who haven't had anywhere near as many problems. So if you develop cancer, maybe your road will be better.

We in the news business try not to make up facts for a pretty story.

I am glad I have so many people caring about me. Know that I equally care about you.

  

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posted by steveeswenson on Thursday, October 4, 2007 at 05:16 PM
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24 comments from 23 users

1

posted by honorerdieu on Oct 4, 2007 at 06:27 PM

My best wishes to you for a speed recovery, Steve!

posted by janay11 on Oct 4, 2007 at 06:40 PM

Re: Chemo

Steve,

best wishes sending to you. I can't imagine what you must be going through, I hope you wil keep up your positive outlook.

Janet

posted by smayer on Oct 4, 2007 at 07:01 PM
Steve -- "Wimp" is definitely out, so "chemo oddity" will have to suffice. After reading your words and the scores of responses from so many caring bloggers and Web friends, I can only join them in thanking you for sharing your journey -- and marvel at the amazing responses you've received from so many. People complain about blogs being full of vitriol and personal attacks, but you appear to inspire the opposite reaction (even before we had to be nice to you!). As a guy who avoids doctors on the off-chance they might be inclined to impart bad news, I think maybe I can learn something from your matter-of-fact approach to this "temporary inconvenience."
Feel better. Get well.
posted by sagefever on Oct 4, 2007 at 07:02 PM
We are thinking about you~and your no wimp.Thank you for sharing this with us.Gob Bless.
posted by ChristinePeterson on Oct 4, 2007 at 07:34 PM
Steve, you most definitely are not a wimp.

Odd, yes, but in a good way that makes your friends and colleagues smile.

You know you have lots of people sending good thoughts and prayers.

Christine Peterson
posted by theColorNine on Oct 4, 2007 at 08:11 PM

 

I feel badly for what you're having to go through, Steve.  Unfortunately, it might get worse before it gets better.  But calling yourself "a wimp?"  I think you are anything but a wimp.  I think you are extremely courageous.

Hang in there!

 

posted by anglo1 on Oct 4, 2007 at 09:01 PM

Steve, I took my friend in today for his two month check after chemo and radiation [I forgot today was my day, i feel like such an ass, I was late}  He is coming along slowly but he is improving.  His wife doesnt see it but I see a big change.  He has been through a very tough regime but then he is a very tough guy.  He had the chem and radiation together.  Have you told us why they call the FU pills the FU  pills?  You are going to get better.  You will most likely feel like you won't at some time but you will.   I really don't know you but with a wife such as yours and the  love you give and recieve you really have no othere option but to get through this ordeal and live and love better than ever. 

 

 

 

 

 

 

 

 

 

 

 

 

 

posted by NancyII on Oct 4, 2007 at 09:04 PM

Steve...My sister went through chemo about 5 years ago and is doing well.  She talked about going through the weakness and fatigue but in the end, it was worth it to us at least.  We still have her and I am so grateful.

Hang in there.  It's rough but you have a lot of people praying for you and sending good thoughts your way.

To use an old tried and true..."If God brought you to it, he'll bring you through it."

posted by TomW on Oct 4, 2007 at 11:38 PM
Steve, your spirit and humor are amazing.  Thank you for sharing and bringing into your life.  Listen to your wife and doctors and do whatever they say.  I'll keep you in my prayers.
posted by Laurah on Oct 5, 2007 at 08:11 AM

Stevie,

It figures you'd snag the chair closest to the pretty nurse. You've still got it! Hang in there.

posted by JeffHarbin on Oct 5, 2007 at 08:30 AM
Look at it this way Steve.  You're living out the carcinogenic version of every man's fantasy: two beautiful women fawning over you at the same time.  That makes you my hero!
posted by BakersfieldDoc on Oct 5, 2007 at 08:35 AM


Steve,

Hang in there. Many are praying for you.

~BD
posted by sfinboston52 on Oct 5, 2007 at 09:32 AM
Hang in there...best wishes and I am keeping you in my thoughts.
posted by mattloch on Oct 5, 2007 at 09:51 AM
Stay strong, Steve.
posted by GlennJohnson on Oct 5, 2007 at 09:57 AM

Steve

Wimpy?? Isn't that a friend of Popeye's? Maybe you should try a hamburger and gladly pay for it on Tuesday. Or, maybe some spinach. It helps Popeye. In all seriousness, we are confident things will go well and you will be back on the golf course soon. But, this doesn't mean you get any strokes. Remember, just play it where it lies and everything else will work out. Our thoughts are with you.  

Glenn & Vicki

posted by AudreyB on Oct 5, 2007 at 09:58 AM

Steve

My brother Steve is on his second go round of Chemo.  The doctors told him he would get sick 24 hours after the treatment.  Exactly 24 hours later he got sick. 

I told him to keep his eyes on the prize.  Remission.

Gosh it's hard to type because my dog, Baby, keeps pulling on my sleeve with her teeth.

 

posted by blognroll on Oct 5, 2007 at 10:43 AM
You are not only a true survivor, you are a thriver.  This has to be the best example of what Freud referred to as "sublimation" that I have ever come across.  And though it's increasingly difficult to keep anything down, I hope you will continue to find ways of keeping your spirits up.  You have my prayers and my support along with the prayers and support of my family and my "family" (the blog community here). 
posted by robbwillis on Oct 5, 2007 at 12:48 PM

I played some bad golf this morning in your honor, Steve. Hope you'll be doing it on your own real soon.

Take care,

Robb

posted by steveeswenson on Oct 5, 2007 at 01:31 PM

Anglo,

Great question about the 5FU. I'm beginning to think it's meaning is not so subtle.

Glenn,

   You don't know how much I would like to eat a hamburger.

Robb,

I'd give anything right now for a bad round of golf.

Laura,

It's not my fault pretty women want to help me.

SteveMayer,

Thanks for your kind words. Say hi to Patti and mom for me.

To the rest,

I can't tell you how much your care and concern mean to me. I know I'll get better with people like you to buoy my spirits.

P.S. Jeff, I'm supposed to give a speech for Frank Hoover's retirement Sat. nite. I will certainly mention the beer and magazine.

posted by JeffHarbin on Oct 5, 2007 at 03:29 PM
You'll get to hear it again when you finally call it a career.  I don't care where we live, Rob W. and I plan to travel as far as necessary to tell it the right way (meaning we'll maximize the embarrassment factor for ya!)
posted by ghostriter on Oct 5, 2007 at 04:34 PM
Steve, I have to hand it to you for guts and gumption. Your positive attitude and the love you get at home will get you through this, I'm sure. Take care, now, and be patient with yourself. Everyone reacts to medications differently, whether it be chemo or Tylenol.
posted by adampayne on Oct 5, 2007 at 05:05 PM
Hang in there, Steve!
posted by gwenner on Oct 8, 2007 at 10:55 AM
Steve-

You're not a wimp.

Though, come to think of it, you always HAVE been prettier than me. Hmm, maybe there's something to that wimpy business after all....

We miss you here in the newsroom and think (mostly) good thoughts about you 24/7. Hang in there buddy.

-- Gretchen
posted by kgnelson54 on Oct 9, 2007 at 08:07 AM
Steve,
I slept through most of the talk about golf.  Renee makes getting "chemo" much easier.  Hope they get you that medication that isn't covered to make that nausea better.  There were no whimps in that room on the 1st.
Take care,
Kevin
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