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steveeswenson - > SteveE's Stories -> They're zapping me, but it doesn't hurt yet
They're zapping me, but it doesn't hurt yet

I get free cookies at Dr. Dean Davis' office now — the signal that my radiation has begun.

I went in last  Monday, Nov. 12,  for what I thought was just to get X-rays. I did get the X-rays but only as a prelude to strapping me down for radiation.

Therapists Jesse and Wayne lined me all up, explained how they would begin on my lower right neck and work around to my lower left neck.

They said I wouldn't feel a thing.

For now.

It will take awhile — a few weeks of five-times a week radiation — to eliminate my tastebuds, dry out my mouth and inflame my throat so I can't swallow. Dr. Davis said I can eat well at Thanksgiving but not Christmas.

That's why I have this stomach tube so I can be fed directly into my tummy. With liquid such as Ensure.

The tube may be my new best friend during that time. But it is not now. I have to clean this reddish-brown guck around my stomach port. The good doctor tells me that's mid-body mucus.

I'm guessing the higher you go up, the more green it gets.

Speaking of colors. Not only has my tumor shrunk with this chemo stuff (about 50 percent), but it has turned from an old hamburger sort of tint to a pinkish glow.

That's good news, the doctor said. Well on its way to being cured.

Meanwhile, back at the radiation table, here's how that works. My white mesh mask and shoulder braces lock me in while this big round machine does a three-fourths orbit around my neck.

The actual radiation can't be seen, but it sounds like an anemic horn from a Model T. The therapists leave me alone in the room (no sense all of us getting hurt), while the pre-programmed machine zaps me.

It'll take a little time to hurt me, but rest assured, the regiment is determined to  do some serious messing with my throat.

On Wednesday, I went back in for more chemo. Not as much as before, but enough to make me tired.

That's the nature of this beast. They wipe you out.. You recover. They wipe you out some more. You recover.  Broken record until you're cured.

And while the chemo was less, it still knocked me down almost as much as the first time. Four times I went to kneel at the porcelin god Wed., Thurs. and Friday, and then I went crazy, with five more trips between Friday and Saturday morning.

That prompted me to call Dr. Anthony Ciarolla who said I could stop taking the chemo tablets for awhile. On Sunday I felt pretty good, but this Monday I was light headed most of the morning and feeling nauseous.

As I've said, people who have this disease actually survive stuff. And I'm learning it's not good stuff. 



P.S. I went out and played 9 holes at Buena Vista Golf Course last Monday with my brother. I took a Vicodin because my stomach tube hurt. I went pippyup Tuesday morning. The good doctor tells me narcotics will do that to you. What good is a pain killer if it just causes you more pain? Answer me that, drug lords.

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posted by steveeswenson on Tuesday, November 13, 2007 at 03:34 PM
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posted by kandmking on Nov 27, 2007 at 12:23 PM

Hello there. Mary Lou sent me the link to your blog. Very interesting and informative! I'm going through similar trials and tribulations as yourself, but am about a month behind you (I start radiation in a couple of weeks; currently on chemo). I'll probably put a link to you on my own blog, if you don't mind. More later...  Mike

posted by baby on Nov 20, 2007 at 06:07 PM

If you come up to get in a short nine before it snows, Mary and I can do some shopping here in town.  There's always parking and never long lines.

Or we could just sit on the deck and watch the clouds turn pink. 

Still sending warm fuzzies when I see you and Mary beaming out from the pic on our fridge! 

Shannon

posted by steveeswenson on Nov 14, 2007 at 09:06 AM
Jeff,
Invite me to the next one and I'll be there, packing ointment and all.

And if any of you ever wondered how Mary's humor melds with mine, let me share this with you. Before she read this blog, I said it explained the red stuff and it wasn't blood. She said, "Well, it's not lipstick."
posted by JeffHarbin on Nov 14, 2007 at 08:51 AM

Heya Steve.  We missed you in Vegas this weekend (the 7th anniversary of a certain party you might recall...lol). 

Did your docs mention anything about having radioactive urine for the next 6 months?  My mom went through radiation therapy for thyroid cancer a few years back, and she ended up having a bathroom all her own after we learned that interesting tidbit.  I always figured it was my Dad we  had to thank for near-deadly bathroom encounters, but then my Mom decided to get in on the action.

Maybe you can create some sort of Comic Book Superhero out of this.  I'll leave it to you to work out the details.

posted by NancyII on Nov 14, 2007 at 06:27 AM
Pippyup sound a lot better than "barf."  I kinda like it.  .....The name..not the event.   :-)
posted by saberhagen on Nov 14, 2007 at 03:35 AM

Pippyup???

Haven't heard that one before.

Don't know what it is, but I suspect it isn't pleasant.

Glad you got in nine first.

How 'bout you pippy up to Marvelous Mountain of Pine for another nine?

Before it snows.

 

 

 

 

 

posted by bluegrassgrrl on Nov 13, 2007 at 08:35 PM
Steve,

Hang in there, You're doing great!

"Real" Steve,

Wow. I'm flattered.
posted by smayer on Nov 13, 2007 at 06:14 PM
Steve -- I'm reading every word of your blog 'cause I want to know what to expect when I get old like you. Checking off future shopping list: Ensure, Geritol, Depends, extra pair of reading glasses to replace the pair I left at Bingo tourney ...

Seriously, if your throat gets inflamed, there's a chance it could quiet your infectious laugh for a while — and I'm not looking forward to that. But I'm counting on you and your laughter coming back stronger than ever. Only our former colleage Michelle Terwilleger has a better laugh than you.

Your friend and admirer,
The Real Steve
posted by dgrealish on Nov 13, 2007 at 05:39 PM
I've been asking myself questions about similar drugs, Steve.  I don't understand how people get hooked on the crazy things.  They have to be determined!  Good luck with the radiation & chemo.   You're still in our prayers.
posted by sagefever on Nov 13, 2007 at 05:38 PM
Just keep putting one foot in front of the other Steve.
posted by randomfactor on Nov 13, 2007 at 05:15 PM
Uh, Steve, narcs *ALSO* plug up the other end.  Forewarned.
posted by OldBlue56 on Nov 13, 2007 at 04:30 PM
Steve, it sounds like chemo is exactly like golf. You swear you will give up that stupid game, and the next day, you just have to try it again. And I saw on the news today that the rescue people in San Francisco feed the ducks covered in oil Ensure if they have gotten it into their mouths. I sure hope you don't start quacking!
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